22q Multidisciplinary Clinic at Joe DiMaggio Children’s Hospital
The 22q multidisciplinary clinic at Joe DiMaggio Children’s Hospital is the first 22q clinic of its kind in the state of Florida and the only clinic in in the United States serving adults with 22q as well. Our goal is to provide patient-centered, comprehensive, and individualized care to patients who have 22q11.2 deletion syndrome (also known as DiGeorge Syndrome or Velocardiofacial Syndrome) and 22q11.2 duplication syndrome (slightly different condition). Our 22q multidisciplinary Program at Joe DiMaggio Children’s Hospital, inaugurated in August 2018, has established solid partnerships with local and national 22q groups and family leaders. The 22q Clinic has a very diverse patient population and a dedicated team of medical providers with expertise in 22q11.2 Deletion and Duplications Syndromes. Our team’s work has been presented at national and international meetings, like the most recent 22q scientific meeting in Split, Croatia. The program is also unique in that it is now expanding to care for adult 22q patients. Our clinic is another live example of how multidisciplinary care is the best way to achieve the most optimal outcomes in 22q patients.
Patients are evaluated by all the medical specialties they need in the same day and in all in one place. Our team is committed to providing the most comprehensive care to our patients and their families through a unique family-centered approach. Many of our physicians and staff are bilingual, offering services in both English and Spanish to better serve our 22q community. Our clinic includes the following Pediatric subspecialties: Genetics, Immunology, Endocrinology, Ear, Nose and Throat (Otolaryngology), Developmental Neurology, Cardiology, Speech Pathology and Nutrition.
Boston, MA ~22q Childrens Clinic at Massachusetts General Hospital New England Regional Center for 22q11
The MGH 22q11 Center sees patients with 22q11 deletion syndrome of all ages, inclusive of patients with DiGeorge and velocardiofacial syndromes. Our clinic draws on the unique expertise of physicians at MGH, MassGeneral Hospital for Children, Massachusetts Eye and Ear Infirmary, and the Lurie Center for comprehensive, syndrome-specific, and evidence-based care. We provide a medical home with guideline-based health care management for a patients, coordinate specialty care or consultation with 22q11 team multidisciplinary team subspecialists (pediatric or adult specialties), and address developmental, behavioral, and psychiatric concerns.
Our goal is personalized health care for wellness and optimal quality of life for our patients with 22q11.2 deletion syndrome.
22q Clinic at Phoenix Children's Hospital
The 22q Clinic at Phoenix Children’s Hospital is the only comprehensive program in Arizona for children diagnosed with 22q11.2 deletion syndrome. That means your child can be seen by all of the specialists they need, all in one place, and appointments with all of your child’s specialists can be scheduled on the same day. And since we are a children’s hospital, we are committed to providing family-centered care.
Our goal is to provide the most comprehensive assessment and treatment plan to our patients and to provide families with education and support to help them take best care of their child.
In addition to addressing the medical and emotional needs of the child, our team also works with the family to implement effective learning and behavioral interventions to help the child grow and reach their full potential.
We also coordinate your referrals to the appropriate specialists for your convenience.
Cincinnati, OH ~22Q-VCFS Center at Cincinnati Children’s Hospital Medical Center
Whether you call it 22q11.2 deletion syndrome (22Q), velocardiofacial syndrome (VCFS), or DiGeorge syndrome you have come to the right place. Our dedicated team of healthcare professionals at Cincinnati Children’s has in-depth knowledge and experience managing the condition, but we never forget that each child is unique. The 22Q-VCFS Center at Cincinnati Children’s emphasizes a multidisciplinary approach to caring for our patients.
The Division of Human Genetics has a history in clinical care, diagnostic services, education and research dating back to its original director, Dr. Josef Warkany; the founder of teratology. Clinical genetics focuses on providing comprehensive diagnostic, management and treatment services with emphasis on tailoring care to specific patient and family needs, through interdisciplinary clinics and programs. Clinical laboratory services develop and implement state-of-the-art technologies for biochemical, cytogenetic, and molecular diagnostic testing for a multitude of pediatric and adult disorders.
22q Clinic at Phoenix Children's Hospital
The 22q Clinic at Phoenix Children’s Hospital is the only comprehensive program in Arizona for children diagnosed with 22q11.2 deletion syndrome. That means your child can be seen by all of the specialists they need, all in one place, and appointments with all of your child’s specialists can be scheduled on the same day. And since we are a children’s hospital, we are committed to providing family-centered care.
Our goal is to provide the most comprehensive assessment and treatment plan to our patients and to provide families with education and support to help them take best care of their child.
In addition to addressing the medical and emotional needs of the child, our team also works with the family to implement effective learning and behavioral interventions to help the child grow and reach their full potential.
We also coordinate your referrals to the appropriate specialists for your convenience.
22q Clinic at Phoenix Children's Hospital
The 22q Clinic at Phoenix Children’s Hospital is the only comprehensive program in Arizona for children diagnosed with 22q11.2 deletion syndrome. That means your child can be seen by all of the specialists they need, all in one place, and appointments with all of your child’s specialists can be scheduled on the same day. And since we are a children’s hospital, we are committed to providing family-centered care.
Our goal is to provide the most comprehensive assessment and treatment plan to our patients and to provide families with education and support to help them take best care of their child.
In addition to addressing the medical and emotional needs of the child, our team also works with the family to implement effective learning and behavioral interventions to help the child grow and reach their full potential.
We also coordinate your referrals to the appropriate specialists for your convenience.